Xavier's pure puppy joy
UPDATE: A caramel-coloured puppy is all Xavi ever wanted. And thanks to our wonderful partners such as Pedigree, Xavi's wish has come true and he and his puppy Vinci are now inseparable!
It was during a joyous occasion - a wedding - when little Xavier’s life would change forever.
Xavier, then 4, was dressed in a smart chequered shirt, with a black vest and black tie. His two sisters in pretty white dresses and mum and dad also looking stylish.
“It was about 8pm, and he was dancing,” mum Mel recalled.
“We were laughing at him because he was doing this movement with his arms, going around and around like a Pac-Man and he looked like he was having a great time.
“But then something odd happened, he came up to me and didn’t look well. I found a couch near a fire, and I was holding him like a baby.”
That night when he went to bed Xavier, or Xavi as he’s called, was so hot his pyjamas were drenched. It was the first of many nights of sweating and stomach aches. Doctors told Mel it was probably a virus.
A real shock
Alarm bells started sounding one day shortly after when Xavi couldn’t walk on his left leg.
When he was taken to the hospital, there were no immediate answers until the diagnosis came through.
Doctors told Mel that Xavi had systemic juvenile rheumatoid arthritis. The “systemic” means Xavi’s entire body would be in pain.
“That was a real shock because up until then he was a normal kid,” Mel said.
“He was in pain; it was hard watching him in pain. You want it to be you, not them. He also because he was on steroids, he would get really fluffy cheeks, and he didn’t look like himself and that upset him.”
Xavi’s condition was soon managed with medicine and Xavi, and his family was able to go away on a holiday.
But not long after his return, a blood test showed something irregular.
Xavi’s haemoglobin was low, and tests eventually showed he had a massive abdominal tumour and lesions on his kidney, lungs and knee. Xavi had Burkitt lymphoma.
Xavi’s chemotherapy started immediately and his aggressive treatment plan of seven rounds of chemo – each lasting three to five days – attacked the cancer.
“I explained it to Xavi in a way that he was very sick, and like the cartoons, it was all the bad guys, and we needed all the superheroes to go in as the medicine,” Mel said.
“If he were feeling better he would say ‘the good guys are winning’ or if he were feeling bad he would say ‘it feels like the bad guys are winning, I need more good guys’.
“It’s a lot for one little person to have to go through. It makes no sense. It’s a lot to take on, almost mind-boggling.”
Mel said it wasn’t conclusive Xavier’s two conditions were linked but it was possible.
“We will never know for sure,” she said.
“You are fighting for their life. You’re always talking to doctors, feeding him …. there is always something to do.”
Xavi's new friend
Xavi, now 7, has been in remission from cancer since August and is also on unmedicated remission for his rheumatoid arthritis. So, after years of battling, it’s time for Xavi to enjoy his childhood and look forward to a lifetime of smiles!
Mel said since Xavi was a child he has always taken the opportunity to pat a dog when the family are out and about.
Because of COVID-19, Xavi's wish had to wait. But recently it came true, thanks to help from corporate supporters such as Pedigree.
Mel said the puppy named Vinci was already loved immensely by Xavi.
"They both get so excited to see each other," she said. "Xavi helps with Vinci all the time.
"Xavi's favourite thing about Vinci is that Vinci tickles him and that he's super, super cute."
Laraine Finlay from Make-A-Wish’s Sydney North branch said Xavi was a warm-hearted boy and the branch volunteers did what they could to build his anticipation and keep him positive while he waited for his wish to come true.
“To keep Xavi engaged until his wish, we sent him a new page for his puppy booklet every Monday with info about looking after puppies,” she said.
Xavi's favourite thing about Vinci is that Vinci tickles him and that he's super, super cuteMel mum to wish child Xavier, 7, arthritis & Burkitt lymphoma
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The Wish Journey
How a wish comes to life
Make-A-Wish volunteers visit each child to capture their greatest wish, getting to the heart of what kids truly want and why. This profound insight is part of what makes Make-A-Wish unique, giving children full creative control and helping to shape their entire Wish Journey.
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